Beth Potter is a Professor of Epidemiology and Public Health at the University of Ottawa and an Affiliate Investigator at the Children’s Hospital of Eastern Ontario Research Institute. Her research aims to produce evidence to improve health care and outcomes for children with rare genetic diseases. She is Principal Investigator for the INFORM RARE research network, which brings together patients and caregivers, clinical providers, and methodologists in the design of patient registries and clinical trials for specific inherited metabolic and neurologic diseases. She also leads the Registry sub-platform for the RareKids-CAN Pediatric Rare Disease Clinical Trials and Treatment Network.